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Child Neurology at the top of the world

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Child Neurology at the Top of the World

In May 2010 I met by chance in Rome Dr. Galo Pesantez Cuesta, a pediatric neurologist from Quito, who was, like me, on his way to Cairo to attend the International Child Neurology Congress. This wasn’t the first time I had met him, as I already had the chance to appreciate his work during earlier congresses of the Ibero-American Academy of Pediatric Neurology. 

Centro Nacional de Epilepsia

At the time I served as Chairperson of the ICNA Educational & Training Committee, and therefore had a profound interest in promoting education in child neurology around the world. During the Cairo congress I had the opportunity to discuss with my friend Galo how to improve the level of pediatric neurology in Ecuador. We made plans for me to visit Ecuador and organize together the first Child Neurology meeting within the National Epilepsy Center directed by Dr. Pesantez in Quito.

In addition, I suggested to Galo to spend a training period in Rome and sign up to the Master program in Child Neurology at the Tor Vergata University Hospital. In January 2011 I visited the Epilepsy Center in Quito located 3000 meters above sea level, and the bottom of the Pinchincha volcano, in very picturesque surroundings. It is probably the highest center in the world dedicated to the cure of children affected by epilepsy and developmental disabilities. In that same location Dr. Galo Pesantez Cuesta and Dr. Monica Rios Rodriguez organized a school for the rehabilitation of children affected by neuropsychomotor disabilities. 

During my visit I noticed that very little information was available in the local language about the progresses of the pediatric neurosciences, particularly the management of neurodevelopmental disabilities, including epilepsy, mental retardation, autism, ADHD and cerebral palsy. To improve the situation I offered to send over as much information as possible that would help improve the quality of care for children affected by neurological disorders, and offered to organize the publication of booklets in Spanish dedicated to the main neurological problems found in the community. The Italian Embassy in Quito provided the initial financial support required to publish the first two booklets dedicated to epilepsy and autism.
In 2011 Dr. Galo Pesantez completed his Masters degree in Rome with a thesis on epilepsy and neurodevelopmental disabilities. In November 2012 he founded the Ecuador chapter of the International Bureau for Epilepsy. During the 7th Latin American Congress of Epilepsy in Quito he organized a Satellite Symposium dedicated to the management of children with epilepsy and its comorbidities. Roberto Caraballo (Buenos Aires, Argentina), Lilia Nunez Orozco (Mexico City, Mexico) and Paolo Curatolo (Rome, Italy) were among the invited speakers of this meeting, which was attended by more than 200 participants. I’m proud of the fact that the Italian Embassy in Quito has pledged to support financially the publications of the National Epilepsy Center and strengthen the scientific ties between Italy and Ecuador for the benefit of children affected by neurological diseases.